Using the Self-Management Assessment Scale for Screening Self‐Management Support Needs in Type 2 Diabetes-Experiences From Nurse-Led Digital Self-Management Support in Swedish Primary Health Care: Qualitative Study
Background: Globally, most countries face a common challenge by moving toward a population-based structure with an increasing number of older people living with chronic conditions such as type 2 diabetes. This creates a considerable burden on health care services. The use of digital tools to tackle health care challenges established views on traditional nursing, based on face-to-face meetings. Self-management is considered a key component of chronic care and can be defined as management of the day-to-day impact of a condition, something that is often a lifelong task. The use of a screening instrument, such as the Self-Management Assessment Scale (SMASc), offers the potential to guide primary health care nurses into person-centered self-management support, which in turn can help people strengthen their empowerment and self-management capabilities. However, research on self-management screening instruments is sparse, and no research on nurses’ experiences using a digitalized scale for measuring patients’ needs for self-management support in primary health care settings has been found.
Objective: This paper describes diabetes specialist nurses’ (DSNs) experiences of a pilot implementation of the SMASc instrument as the basis for person-centered digital self-management support.
Methods: This qualitative study is based on observations and interviews analyzed using qualitative content analysis.
Results: From the perspectives of DSNs, the SMASc instrument offers insights that contribute to strengthened self-management support for people with type 2 diabetes by providing a new way of thinking and acting on the patient’s term. Furthermore, the SMASc was seen as a screening instrument with good potential that embraces more than medical issues; it contributed to strengthening person-centered self-management support, and the instrument was considered to lead both parts, that is, DSNs and patients, to develop together through collaboration.
Conclusions: Person-centered care is advocated as a model for good clinical practice; however, this is not always complied with. Screening instruments, such as the SMASc, may empower both nurses and patients with type 2 diabetes with more personalized care. Using a screening instrument in a patient meeting may also contribute to a role change in the work and practice of DSNs.
JMIR Nursing 2020;3(1):e16318
A need for structural changes in health care systems has emerged due to demographic changes and an increasing number of older people with chronic diseases such as type 2 diabetes (T2D), hypertension, chronic obstructive pulmonary disease, and asthma [- ]. T2D is increasing in prevalence and constitutes a major cause of morbidity and mortality globally. In addition to contributing to a significant decline in health status in many patients, this condition creates considerable burden on health care services [ , ]. Self-management is considered a key component of chronic care and can be defined as the management of the day-to-day impact of a condition, which is often a lifelong task [ ]. Self-management support and evaluation of patients’ self-management efforts are most often based on glycated hemoglobin (HbA1c) values and other measurements such as blood pressure and blood lipids. However, diabetes services are often unable to meet patients’ needs, such as emotional adjustment [ ]. The struggle for people with T2D to manage self-care is therefore seldom evaluated [ ]. However, most instruments focus on medical issues while instruments assessing patients’ perspectives and special needs for self-management support are lacking.
The development of digital tools for self-monitoring is rapidly increasing and becoming more common in chronic diseases. When implementing digital self-management support programs, there is a challenge to change from a traditional biomedical care approach based on monitoring and advice toward person-centered care based on empowerment . Recent studies show that there are split opinions about using digital tools for self-management support among diabetes specialist nurses (DSNs) [ ] and people with T2D [ ]. Using digital tools challenges established views on traditional nursing based on face-to-face meetings and the importance of the care relationship in itself. In addition, patients seem to be quite positive about using eHealth for self-management support, while DSNs perceive that they lack an overview and are working in a digital chaos [ , ]. This study attempts to bridge this divide by applying the concept of person-centered self-management guidance using a screening instrument—the Self-Management Assessment Scale (SMASc) [ ].
A broad definition of self-management implies both activities and support of chronic conditions, which may vary [, ]. Self-management is defined as daily tasks that individuals must undertake to live comfortably with a chronic illness by gaining confidence in dealing with medical management, role management, and emotional management [ , , - ]. Self-management support, on the other hand, is defined as the provision of education and supportive interventions by health care professionals to increase patients’ skills and confidence in managing their health problems. This includes regular assessments of problems, goal setting, progress, and problem-solving support [ , ]. Emotional support for coping with the existential and emotional impact of having chronic conditions is seldom included in an annual visit to diabetes clinics [ ].
The demands of governments and policy makers on the development of digital care are increasing. Digital care is suggested to decrease pressure on health services, but changes in responsibilities for patients and health professionals are not sufficiently evaluated or reported [- ]. In Sweden and many other Western countries, DSNs—specialist nurses with education in diabetes care and working within primary health care—are the professional groups that most often meet and provide self-management support to people with T2D [ - ]. This study focuses on DSNs and their experiences of participating in a pilot implementation of person-centered self-management support for people with T2D, where digital tools are combined with the goals of person-centered care. This combination has the potential to enable tailored solutions and individual approaches that strengthen self-management capabilities, self-efficacy, and patient empowerment [ , , ].
Within a pilot implementation, a self-assessed screening instrument (SMASc) was introduced that could assess the needs for self-management support. The SMASc is a short, validated screening instrument developed within our research group . The instrument screens for strengths and possible barriers for self-management to be used in conversations between the person with T2D and the DSN. The SMASc instrument assesses 5 areas important for effective self-management over time: knowledge, goals for the future, daily routines, emotional adjustment, and social support, all generated from the literature on patient perspectives on chronic illness, including T2D and related self-management challenges [ ], and it visualizes the results as an automatically generated profile ( ). Each area of the SMASc has cutoffs between low value (red; acute need for self-management support), median value (yellow; no acute need for self-management support), and high value (green; no need for self-management support), directing the conversation regarding self-management support between the nurse and the patient [ ].
The DSNs, when using the SMASc in the diabetes clinic, involved their patients in reflective conversations about the patients’ needs for self-management support in the various areas. They could also suggest other digital resources such as apps and websites for patients to improve self-management in problem areas. The SMASc, therefore, offers the potential to guide nurses into person-centered self-management support, which in the next step could increase people’s responsibility for their health and strengthen their empowerment and self-management capabilities .
Research on experiences using self-management screening instruments is sparse, as no published research on nurses’ experiences using digital scales for measuring patients’ needs for self-management support in primary health care settings has been found. To address this knowledge gap, it is important to gain more insight into and highlight this topic. Therefore, this study aims to describe DSNs’ experiences of a pilot implementation of the SMASc instrument as a basis for person-centered digital self-management support.
This study is a part of a larger randomized intervention project (ClinicalTrials.gov [NCT03165084]) that aims to design and implement person-centered interactive self-management support in primary health care in the north of Sweden. More information about the project’s design, setting, and intervention is documented in a study protocol . This study uses a qualitative descriptive approach based on participatory observations and individual interviews.
Setting and Participants
This study was performed in 3 primary health care centers in Sweden, with 5 DSNs managing the diabetes clinics. DSNs are fundamental to this study because they introduce the SMASc instrument and, when needed, provide self-management support for people with T2D. The characteristics of the participating DSNs are given in.
Preparation and Accomplishment of the Pilot Implementation
The participating DSNs were provided with a 1-day group training session, which included role-playing. In addition, they received a two-hour introductory session with the first author (UÖ). The training involved learning how to use the SMASc instrument to score and discuss the needs for self-management support and to develop person-centered plans for self-management support together with patients. The participating DSNs invited patients at their annual visit to their diabetes clinic and asked them to score their self-management support needs by using the SMASc. Thereafter, they were expected to discuss the 5 areas of the SMASc, with a particular focus on low-scoring areas. The profile of the SMASc results was expected to make the discussion more person-centered, and patients were also, when needed, recommended digital self-management support through the webpage  or the app, MySugr [ - ]. There was a handout manual containing instructions for DSNs about the SMASc and how to interpret the scoring and how to cope with possible barriers. The first author (UÖ) visited the intervention practice sessions on the first day of the intervention to provide additional support and to ensure that the DSN had understood the information and was able to work with the screening instrument in their consultations with the patients with T2D.
Participatory observations of clinical visits (n=14) and following individual face-to-face interviews with each of the DSNs were conducted between September 2018 and February 2019. Participatory observations focused on the interaction between the DSN and the patient during consultations. The observer adopted an observer as participant approach, interacting only with participants if it was necessary to make a participant feel more at ease with the observation process [, ]. Field notes were used while taking observations and were analyzed by identification and categorization of the types of interaction and further if there were any special occurrences observed during the visit. To ensure credibility and dependability, one author (ÅH) experienced in qualitative analysis confirmed the data and categorization. The observations were not audiotaped [ , ]. According to Silverman and Marvasti [ ], the context of the observation is fundamental for the quality, further one has to be aware of facial expressions, gestures, and movements—all key data while making an observation. These types of observations were then used to interpret various situations and were used in the following interviews [ ]. The interviews included open-ended questions, were audiotaped, and lasted for 60 to 90 min. On the basis of the observational data, a general semistructured interview guide was complemented with the questions. The opening question was, “Have you ever used any digital screening tool to measure the patient's need for self-management?” Examples of other questions included the following: “How is it to use the SMASc instrument in the patient meeting compared to before?” “Can the SMASc instrument highlight the needs of support that the patient is most in necessity of? “Would you be able to tell in what way?” The interview guide provided a flexible frame for questioning and domains (areas) covering topics about DSNs’ knowledge and perception in using the SMASc instrument for person-centered guidance and self-management support in their meeting with patients.
Qualitative content analysis, as described by Graneheim and Lundman [, ], was used to analyze the interviews [ ]. This is an appropriate method to highlight people’s thoughts about their experiences and their actions [ ] and focuses on describing variations and identifying similarities and differences in the text by analyzing the manifest as well as the latent content. Themes at various levels were identified in this study. Subthemes are expressed closer to the interview texts, whereas the themes are expressed more on a latent level, that is, with a higher degree of interpretation [ , ].
The data material was transcribed verbatim by the first author (UÖ). The analysis was conducted in several steps. First, all transcribed text materials (also field notes from observations) were read thoroughly to assess the situation. Next, the text was divided into meaning units, answering the aim of this study. Each meaning unit was condensed and coded. During this process, the first author with help from coauthors continuously returned to the original text to ensure that the core meaning of the meaning units was maintained. This continuous cross-referencing process was maintained throughout the analysis. Similar codes were grouped into subthemes, which were later sorted and abstracted into themes. Finally, the latent meanings of the themes were interpreted and described as a main theme with a higher level of interpretation and abstraction [, ]. During this procedure, to reach reliability, all authors discussed and reflected on the interpretation, sorting, and labeling of codes, subthemes, themes, and the main theme until consensus was reached.
The Regional Ethical Review Board at the Umeå University approved the study (Dnr 2014-179-31M), which was conducted according to the ethical principles described in the Helsinki Declaration . All participants, including patients who participated in the observations, were informed about the study both in writing and verbally before giving their written informed consent. Transcripts were anonymized, and the participants were ensured confidentiality and were free to withdraw at any time. They were also informed that in case of any concerns, they could get their concerns clarified and any data collected could be excluded from the analysis, but none of the participants made such demands.
Participants’ experiences of the pilot implementation of the SMASc instrument in primary health care were mostly positive. DSNs expressed various feelings, and from their narratives, 4 identified themes describing their experiences of using the SMASc instrument were identified and labeled: A screening instrument with good potential, Embraces more than medical issues, Strengthen person-centered self-management support, and Both parts develop through collaboration. The main theme that tied the 4 themes together was formulated—A new way of thinking and acting on patients’ terms. To increase the transparency of the interpretation, themes and subthemes are illustrated with quotations. An overview of the results is shown in.
A New Way of Thinking and Acting on the Patient’s Term
The use of the self-reported SMASc instrument to screen and estimate the patient’s needs or levels of self-management support in the daily work in the diabetic clinics involved various feelings among the participants. The DSNs emphasized that they found that using the SMASc in their meeting with the patient with T2D involved having a more in-depth conversation between them. They expressed that using the instrument, which embraced more than medical issues, led to more person-centered support and further that it was built on mutual trust developed through collaboration. This was interpreted as A new way of thinking and acting on patient’s terms—the DSNs received a new tool that altered their way of approaching the patients.
A Screening Instrument With Good Potential
The participants described the SMASc as an easy-to-use tool to use for in-depth communication with their patients, but a prerequisite was that the patients should respond honestly when scoring using the SMASc. Therefore, the SMASc was interpreted to be a potentially good instrument for use in DSNs’ daily work with patients with T2D.
An Educational, Easy-to-Use Tool
The DSNs described that they had experienced the SMASc to have streamlined the meeting with the patient. The DSNs also expressed that no extra time was needed to fit the SMASc into their regular workflow. The tool was also perceived as easy to fill in and educational for both the patient and the nurse. It took approximately 1 to 2 min to fill in on an iPad, and they received the scoring directly. Furthermore, it was also easy to interpret the results, with scoring points and the demonstrative colors—red, yellow, and green. By interpreting the scoring and demonstrating it for the patient on the table, the DSNs expressed that it was a helpful way to address important topics that could be meaningful for the patient:
...the questionnaire was easy for them to fill in...it became easy to discuss the results [of SMASc]...with all the colors...like the traffic lights...Together [DSN and patient] then we decided what topic we should concentrate on...
Builds on Honest Answering
The prerequisites of using a tool such as the SMASc are that the patients’ answers must be based on truth and honesty; otherwise, it fills no function. The DSNs verbalized that they had experienced that for some reason, a few of the patients probably did not answer honestly on theSMASc. For example, if a patient had their partner present during the visit and the patient scored high on social support but the DSN simultaneously knew that the last time the patient visited, he or she had complained about his or her spouse’s lack of understanding:
...for example, if a patient brings his partner to the visit to the diabetic clinic...then it may become difficult for them to fill in SMASc truthfully about having poor social support...then it will be incorrect...and it can then be difficult for me to talk to the patient about it...it can be sensitive...
Embraces More Than Medical Issues
The DSNs described that they usually checked the patients’ laboratory values and body weight to judge how the patients behaved. They had tried to educate the patients, foremost in pathophysiological and medical topics if the values deviated from the normal. Psychosocial topics were also important, but these had been difficult to address before. The participants also expressed that from their point of view, effective self-management is often dependent on the collaboration between the patient and the DSNs. Although the patient was viewed as a person and thereby more than only a disease, the focus during visits was often on measurements, but by using the SMASc and the conversation around it, the DSNs gained a better understanding of the patient’s overall life situation, thereby increasing his or her empathetic understanding. The SMASc, which embraces more than medical issues, could highlight topics that have seldom been discussed earlier.
The Patient Becomes More Than the Disease
The SMASc conversation focused on the following topics: patients’ knowledge, goals for the future, daily routines, emotional adjustment, and social support. During the annual visits, the nurses had to follow up the standardized annual medical measurements at the same time. The DSNs stated that patients’ daily decisions had a huge impact on their health, and they must therefore be active and informed about their medical issues. They advocated that measurements such as HbA1c and other curves are important but could feel bad when such values were normal, and they did not listen to the patients’ other struggles. The SMASc helped them to understand and make visible which area the patient was struggling with. The DSNs expressed how they were discussing problem areas chosen by the patient. By focusing on the patients’ everyday life priorities, communication was strengthened, and they got a better understanding of the patient’s overall situation:
I think it [results of SMASc] contributes to being able to meet the patient where he or she is...and I think I listen more, actually...it is easier to understand the patient's needs because the questionnaire covers wide areas...
A Door Opener to Address Difficult Topics
The DSNs described it as a door opener in communication when the patient obtained the results from the SMASc and it became clear what topics should be raised in the conversation.
The DSNs also felt that it enabled them to provide better care. The use of SMASc was described as a new way of thinking and working. Areas that received low points were those that the DSN concentrated on in the conversation with the patient. On the basis of the answers in the SMASc, the DSN could better assess where to start and what to focus on in the discussion. This provided a foundation for new directions in their self-management support and answers on what both patients and DSNs should continue with. If patients scored highly on knowledge, the DSNs would realize that they need not repeat information about things that the patients understood:
...by using the questionnaire involves a new way of thinking and working...it guides both me and the patient on what to concentrate on in our conversation...
Strengthening Person-Centered Self-Management Support
The DSNs expressed that by using the SMASc, it became clear and visible for them if a patient scored low in any area. This allowed the DSN to approach the patient in the conversation through an in-depth dialogue to better address the patient’s personal needs. In this way, the DSNs gained insight into what to focus on, and together with the patient, they could set up an individual care plan and support them accordingly. Thus, these individual strategies led to tailored and person-centered self-management support.
Conditions for Tailored Counseling Satisfying
The DSNs described that the SMASc gave them the opportunity to address personal issues about what motivates patients in their self-management. On the basis of patients’ scores and the following discussion, a range of topics that have been discussed previously, such as personal risk factors, readiness for change, patients’ self-management needs, preferences, and health behaviors, were also highlighted. The DSNs experienced that it became easier to develop an individualized self-management plan together with the patient after the SMASc scoring. The DSNs described that although they had only used the SMASc for a short time, they considered that the instrument provided them and the patient with the prerequisites for more person-centered care and tailored coaching. Subsequently, they believed that it strengthened the patients’ ability to carry out self-management activities. The DSN reported that it sometimes took time for them to build a trustworthy relationship with patients with T2D, but by using theSMASc, it became easier for them to come closer to patients and to discuss sensitive topics. They stated that conversations were considered to improve compared with earlier conversations:
...some things that are addressed in the questionnaire may be,...like different type of goals or needs for support for future plans...that may not always come up at the usual visits to the diabetic clinic..., now it will be easier to approach such topics as well...you want to be able to reflect on what has been done and what effects that it has resulted in...
Patients Become More Empowered
The DSNs reported that their discussions with patients about the low-scoring areas in the SMASc motivated the patients to more effectively improve self-management. By making this color scoring visible and sharing between them, the patients seemed to cope better and gain restored strength to perform new activities or better adapt to situations. However, the DSNs all agreed that this required an involved patient and that not all patients could easily be reached. Within the project, DSNs were instructed to refer patients to digital sources for self-help. Some patients seemed to have a positive reaction to this, and the option to monitor themselves without the nurse’s involvement was viewed as positive and surprising for the nurses. Using a digital tool, such as the SMASc, was perceived as a new solution for some of their patients, and the DSNs saw that they would have a new task as coaches in digital self-management support instead of educators:
...one might also think that it [results of SMASc] also can motivate the patient to take responsibility for their own health care...the insights and transparency are not only for me but also for the patient...time for self-reflection...
Both Parts Develop Through Collaboration
Using the results of patients’ SMASc scores helped both DSNs and patients to understand more about themselves and one another. This provided an opportunity for reflection and evaluation from earlier discussions. This was suggested by the DSNs to help the patients strive toward more effective self-management and help the DSNs to understand what type of support they could provide to the patient. Therefore, the SMASc was useful for both parts and guided them toward better collaboration and understanding as well as development for self-management and support.
Incentives for Self-Management and Support
DSNs highlighted that the SMASc gave them incentives for better and more person-centered support and that topics became visible to patients they had not thought of before, such as future goals. The DSNs described that it was this collaborative approach that helped the patients to acquire skills and confidence to manage their condition. Participants also highlighted the need for new self-management strategies and allowed nurses and patients to make a personalized assessment of problems. The DSN expressed that patients with T2D could receive a new kind of support such as emotional support or guidance on illness integration, including issues that are most important to them at this point of departure:
...what is important is that the patient has good illness integration...that everyday life should be the most important, living with the disease [T2D] is challenging...but, it should not take over your whole life..., it should not feel like a mountain that one can’t climb...
Opportunities for Reflections and Reframing
The DSNs described that they thought that the SMASc could be a useful tool in their conversations with patients as it provided an opportunity for reflection, evaluation, or feedback on the previous efforts for both patients and DSNs. It provided answers to what is less good in health care and what changes had to be made in the patient’s own treatment plan. One DSN explained it as having a new mirror image, which included things that had already been done and even reflected on how the self-management support had been perceived. This gave both patients and DSNs an opportunity for reframing and changing the direction forward. The DSNs expressed that the annual assessment with the SMASc to obtain a receipt on how the patient managed his or her life with diabetes must be implemented in full scale:
...what I think about this SMASc...it can be of help...new way to work...no question about that...if you [the patient] fill it in...then I, as a diabetes nurse get the feedback from the patient...in the results of SMASc...about previous efforts, about my efforts on the patient's efforts...
This paper aims to describe DSNs’ experiences of a pilot implementation of the SMASc instrument as a basis for person-centered digital self-management support. To understand the experience of using such an instrument and what it means for a day-to-day practice in the setting of a diabetes clinic, the use of such digital resources such as the SMASc needs to be studied. The central focus in such an observation is the interaction between patients and nurses. Combined with interviews where the DSNs could directly describe and explain their experiences, this study captures a reflexive account of using the SMASc. The main theme concluded that the use of SMASc involved a new way of thinking and acting on patients’ terms.
The DSNs highlighted that the SMASc instrument was perceived as a screening instrument with good potential to facilitate discussions of self-management strategies and thoughts around new ways of thinking and acting on patients’ terms in the health care situation. The analysis also indicates that the use of SMASc as a digital screening tool offers the possibility of another kind of patient meeting where both parties are developed through collaboration. As is seen with other examples of using digital resources, applications are altered and reformed through utilization in everyday practices [- ].
In this study, the DSNs expressed that using the SMASc helped them to restructure the consultation method. They realized that the SMASc had the potential to help them focus on matters of relevance for the patient, thereby enabling them to learn more about the patients’ needs. It was expressed as positive that the SMASc embraces more than medical issues and strengthens person-centered self-management support.
The SMASc offered an overview that helped the DSNs to change focus and highlight issues of importance for the patients, aspects that might otherwise not have been mentioned if they had used their former daily routines.
The SMASc can make it possible to identify the barriers to self-management, and the DSN is given a resource to assess patients’ self-management needs. This is in line with other related studies and initiatives [- ] aimed to support nurses with analytic tools to better understand patients’ situations and to evaluate self-management interventions. One such example is the development of the Self-Management Screening (SeMaS), by Eikelenboom et al [ , ], a SeMaS tool aimed to support the creation of patient profiles that could support nurses in counseling and the evaluation of self-management interventions in primary care. First, an important difference between SeMaS and SMASc is the length. SeMaS includes 27 items and the SMASc includes 10 items, in favor of SMASc in clinical practice. Second, SeMaS is based on psychological theories related to behavior change and internet use, whereas the SMASc is developed inductively from the experiences of patients living with T2D. SeMaS is not translated into Swedish, and we had no knowledge of the instrument when we started to develop the SMASc [ , ].
The SMASc provides a visual response that helps the DSNs to prioritize and provide attention and support to areas of importance. Other topics on the DSN agenda could therefore wait and be managed later or even disregarded. In the context of Swedish primary care, the DSN meets with the patient annually. As consultation traditionally follows a one-size-fits-all  kind of a character, thereby giving a clear concept about what to expect and what questions should be asked, the SMASc provides an opportunity for an alternative person-centered approach. With this background, the DSNs in this study discovered that the SMASc gave them an incentive and support to find out more about how patients experienced their situation and options for self-management. It specifically focused on what patients found to be relevant to discuss and what they did not want to bring up, which did not always comply with the topics the DSN routinely chose to pay attention to. Interestingly, although person-centered care has been promoted for several years [ - ], the DSNs expressed that it is difficult to discuss personal topics such as social support, emotional adjustment, and goals for future without a manual like the SMASc. However, the conversational space through the SMASc suddenly became wider, which led to counseling that could go beyond questions about medication and the importance of compliance in routines.
The SMASc was experienced as easy to use, and the DSNs highlighted that they appreciated that the SMASc also gave them important suggestions, thereby helping and allowing them to address the issues that they would have otherwise forgotten or left out. Technological development in health care has been described as living in a digital chaos . The development of digital resources that includes one’s perspective seems to prolong engagement in it. This is supported by other related studies concerning patients’ engagement in digital resources. Lupton [ ] describes that patients will only use new technologies if they are relevant to their problems and are engaging, easy to use, and effective in achieving change. The DSNs in this study found this tool to be both engaging and easy to use as well as effective in achieving change. The use of SMASc provides a structure for personalized counseling. The design of SMASc was pragmatic; the aim was to offer a screening tool that is easy to use and easy to interpret. The visual result is documented as a traffic light screenshot—something that can be attached to patients’ health records in the future. The digital prototype presented to the DSNs in this study had a low key visual design, as the prime focus was to explore how the result of the instrument was utilized in the meeting by both DSNs and patients. The color scheme—green, yellow, and red—however, follows a traffic light metaphor [ , ], where the latter two colors guide the DSN toward the topics that need attention. This metaphor was perceived to be pedagogic by the DSNs, even if the design can be improved.
Using the SMASc was important for the DSNs as it helped them to discover a new way of thinking and acting on patients’ terms. The use of screening tools such as theSMASc will imply a change of roles in the DSN work models and practices. The emerging challenge here concerns the structure of the meeting with the patient and the strategies by which the DSNs moderate the conversations in a person-centered manner. The DSNs experienced the SMASc as a resource that functioned as a facilitator and initiator in their interaction with the patients about sensitive topics. It facilitated the conversation between them, and it was felt that it led to shared engagement concerning self-management and support needs.
Strengths and Limitations
A strength of this study is the qualitative design that allows for an understanding of DSN experience based on the actual use of the SMASc instrument. Its closeness to daily DSN practice is another strength that emerged, as the pilot implementation was integrated into daily processes as much as possible. This enhances its relevance to decision makers as an application in daily practice that is proven feasible. Furthermore, the sample of participating nurses and the number of observations were considered sufficient. However, some limitations of this study need to be discussed. Some challenges existed in the recruitment phase, where 2 DSNs were recruited later than the others. The DSNs in this study had volunteered to participate and had a specific interest in diabetes care and may have tended to express more positive opinions than average. Therefore, our findings do not necessarily reflect the perceptions of other DSNs.
To our knowledge, this is the first study that has reported DSNs’ experiences of using a screening instrument to measure the level of needs of self-management support for patients with T2D. The results indicate that from the perspective of DSNs, the pilot implementation of the SMASc instrument offers insights that contribute to strengthened self-management support for people with T2D and serves as a guide to person-centered care in clinical practice. However, to obtain this, the benefits rely on whether nurse-led digital self-management support is prioritized in the organization and whether the DSNs are engaged in person-centered care in practice during the visit.
It is important to understand that the implementation of an instrument such as the SMASc may also challenge the traditional roles of DSNs. Even though person-centered care is advocated as a model for good clinical practice, this is not always complied. Instruments such as the SMASc may contribute to making such a shift happen. This study shows that DSNs experienced the use of SMASc as an enhancement to diabetes nursing and that it has the potential to improve self-management among patients with T2D. This study supports that the SMASc is ready to be used but some minor technical refinement and design improvements may need to be done before full-scale implementation.
The authors would like to express their gratitude to the DSNs who generously gave input from their day-to-day work at a diabetes clinic. This study was funded by the Swedish Diabetes Association; the Department of Nursing and the Faculty of Medicine, Umeå University; and the Kempe Foundation.
All authors have been involved in the design of the study. UÖ recruited participants and carried out the data collection and transcriptions. UÖ, ÅH, and UI carried out the data analysis with important input from CO and LJ. UÖ drafted the first version of the manuscript, and all authors contributed to editing the final manuscript. All authors have read and approved the manuscript.
Conflicts of Interest
- World Health Organization (WHO). Global Status Report on Noncommunicable Diseases 2014. Geneva, Switzerland: World Health Organization; 2015.
- World Health Organization. Global Report on Diabetes. Geneva, Switzerland: World Health Organization; 2016.
- Kruk ME, Gage AD, Arsenault C, Jordan K, Leslie HH, Roder-DeWan S, et al. High-quality health systems in the sustainable development goals era: time for a revolution. Lancet Glob Health 2018 Nov;6(11):e1196-e1252 [FREE Full text] [CrossRef] [Medline]
- Ogurtsova K, da Rocha FJ, Huang Y, Linnenkamp U, Guariguata L, Cho N, et al. IDF diabetes atlas: global estimates for the prevalence of diabetes for 2015 and 2040. Diabetes Res Clin Pract 2017 Jun;128:40-50. [CrossRef] [Medline]
- Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 2002;48(2):177-187. [CrossRef] [Medline]
- Pal K, Dack C, Ross J, Michie S, May C, Stevenson F, et al. Digital health interventions for adults with type 2 diabetes: qualitative study of patient perspectives on diabetes self-management education and support. J Med Internet Res 2018 Jan 29;20(2):e40 [FREE Full text] [CrossRef] [Medline]
- Jutterström L. Illness Integration, Self-management and Patient-centred Support in Type 2 Diabetesillness Integration, Self-management and Patient-centred Support in Type 2 Diabetes. Semantic Scholar. 2013. URL: https://www.semanticscholar.org/paper/Illness-integration%2C-self-management-and-support-in-Jutterstr%C3%B6m/ecf217d1719f9e59a917dd9a881ad1af9c1babe4 [accessed 2020-08-28]
- Demiris G, Afrin LB, Speedie S, Courtney KL, Sondhi M, Vimarlund V, et al. Patient-centered applications: use of information technology to promote disease management and wellness. A white paper by the AMIA knowledge in motion working group. J Am Med Inform Assoc 2008;15(1):8-13 [FREE Full text] [CrossRef] [Medline]
- Öberg U, Orre CJ, Isaksson U, Schimmer R, Larsson H, Hörnsten A. Swedish primary healthcare nurses' perceptions of using digital eHealth services in support of patient self-management. Scand J Caring Sci 2018 Jun;32(2):961-970. [CrossRef] [Medline]
- Öberg U, Isaksson U, Jutterström L, Orre CJ, Hörnsten A. Perceptions of persons with type 2 diabetes treated in Swedish primary health care: qualitative study on using ehealth services for self-management support. JMIR Diabetes 2018 Mar 12;3(1):e7 [FREE Full text] [CrossRef] [Medline]
- Öberg U, Hörnsten A, Isaksson U. The self-management assessment scale: development and psychometric testing of a screening instrument for person-centred guidance and self-management support. Nurs Open 2019 Apr;6(2):504-513 [FREE Full text] [CrossRef] [Medline]
- Lorig K, Sobel D, Ritter P, Laurent D, Hobbs M. Effect of a self-management program on patients with chronic disease. Eff Clin Pract 2001;4(6):256-262. [Medline]
- Creer T. Self-Management of Chronic Illness. New York, USA: Elsevier; 2000.
- Lorig KR, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 2003 Aug;26(1):1-7. [CrossRef] [Medline]
- Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. J Am Med Assoc 2002 Nov 20;288(19):2469-2475. [CrossRef] [Medline]
- Corrigan JM, Greiner A, Adams K. 1st Annual Crossing the Quality Chasm Summit: A Focus on Communities. Washington, DC: The National Academies Press; 2004.
- Grady PA, Gough LL. Self-management: a comprehensive approach to management of chronic conditions. Am J Public Health 2014 Aug;104(8):e25-e31. [CrossRef] [Medline]
- Whitehead L, Seaton P. The effectiveness of self-management mobile phone and tablet apps in long-term condition management: a systematic review. J Med Internet Res 2016 May 16;18(5):e97 [FREE Full text] [CrossRef] [Medline]
- Hamine S, Gerth-Guyette E, Faulx D, Green BB, Ginsburg AS. Impact of mHealth chronic disease management on treatment adherence and patient outcomes: a systematic review. J Med Internet Res 2015 Feb 24;17(2):e52 [FREE Full text] [CrossRef] [Medline]
- Hui CY, Walton R, McKinstry B, Jackson T, Parker R, Pinnock H. The use of mobile applications to support self-management for people with asthma: a systematic review of controlled studies to identify features associated with clinical effectiveness and adherence. J Am Med Inform Assoc 2017 May 1;24(3):619-632. [CrossRef] [Medline]
- Granja C, Janssen W, Johansen MA. Factors determining the success and failure of ehealth interventions: systematic review of the literature. J Med Internet Res 2018 May 1;20(5):e10235 [FREE Full text] [CrossRef] [Medline]
- Massimi A, de Vito C, Brufola I, Corsaro A, Marzuillo C, Migliara G, et al. Are community-based nurse-led self-management support interventions effective in chronic patients? Results of a systematic review and meta-analysis. PLoS One 2017;12(3):e0173617 [FREE Full text] [CrossRef] [Medline]
- Boström E, Hörnsten A, Lundman B, Stenlund H, Isaksson U. Role clarity and role conflict among Swedish diabetes specialist nurses. Prim Care Diabetes 2013 Oct;7(3):207-212. [CrossRef] [Medline]
- Boström E, Isaksson U, Lundman B, Graneheim UH, Hörnsten A. Interaction between diabetes specialist nurses and patients during group sessions about self-management in type 2 diabetes. Patient Educ Couns 2014 Feb;94(2):187-192. [CrossRef] [Medline]
- Risling T, Martinez J, Young J, Thorp-Froslie N. Evaluating patient empowerment in association with ehealth technology: scoping review. J Med Internet Res 2017 Sep 29;19(9):e329 [FREE Full text] [CrossRef] [Medline]
- Wildevuur SE, Simonse LW. Information and communication technology-enabled person-centered care for the 'big five' chronic conditions: scoping review. J Med Internet Res 2015 Mar 27;17(3):e77 [FREE Full text] [CrossRef] [Medline]
- Öberg U, Isaksson U, Jutterström L, Orre C, Hörnsten A. Person-centered interactive self-management support in primary health care for people with type 2 diabetes: protocol for a randomized controlled trial. JMIR Res Protoc 2019 Apr 8;8(4):e10250 [FREE Full text] [CrossRef] [Medline]
- Rose KJ, Koenig M, Wiesbauer F. Evaluating Success for Behavioral Change in Diabetes via Mhealth and Gamification: Mysugr's Keys to Retention and Patient Engagement. In: Diabetes Technology & Therapeutics. 2013 Presented at: DTT'13; 27 February–3 March, 2013; Paris, France.
- Grifantini K. Advances in management technology for diabetes: from personal reminders to digital doctors. IEEE Pulse 2014 May;5(3):40-44. [CrossRef]
- Krauskopf PB. Review of American diabetes association diabetes care standards and mySugr mobile apps. J Nurse Pract 2017 Mar;13(3):e159-e160. [CrossRef]
- Wu Y, Yao X, Vespasiani G, Nicolucci A, Dong Y, Kwong J, et al. Mobile app-based interventions to support diabetes self-management: a systematic review of randomized controlled trials to identify functions associated with glycemic efficacy. JMIR Mhealth Uhealth 2017 Mar 14;5(3):e35 [FREE Full text] [CrossRef] [Medline]
- Free Diabetes Smartphone Apps—Downloads and Rankings 2016 vs 2017. American Diabetes Association. 2017. URL: https://diabetes.diabetesjournals.org/content/67/Supplement_1/677-P [accessed 2020-08-28]
- Hompesch M, Kalcher K, Debong F, Morrow L. Significant improvement of blood glucose control in a high risk population of type 1 diabetes using a mobile health app–a retrospective observational study. Diabetes Technol Ther 2017 Feb;19(S1):A1-133 [FREE Full text] [CrossRef] [Medline]
- Manias E, Street A. The handover: uncovering the hidden practices of nurses. Intensive Crit Care Nurs 2000 Dec;16(6):373-383. [CrossRef] [Medline]
- Green J, Thorogood N. Qualitative Methods for Health Research. Thousand Oaks, CA: Sage; 2018.
- Parahoo K. Nursing Research: Principles, Process and Issues. London, UK: Palgrave Macmillan; 2014.
- Silverman D, Marvasti A. Doing Qualitative Research: A Comprehensive Guide. London, UK: Sage Publications; 2008.
- Hsieh H, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res 2005 Nov;15(9):1277-1288. [CrossRef] [Medline]
- Graneheim U, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004 Feb;24(2):105-112. [CrossRef] [Medline]
- Graneheim UH, Lindgren B, Lundman B. Methodological challenges in qualitative content analysis: a discussion paper. Nurse Educ Today 2017 Sep;56:29-34. [CrossRef] [Medline]
- World Medical Association. World medical association declaration of Helsinki: ethical principles for medical research involving human subjects. J Am Med Assoc 2013 Nov 27;310(20):2191-2194. [CrossRef] [Medline]
- Salmond SW, Echevarria M. Healthcare transformation and changing roles for nursing. Orthop Nurs 2017;36(1):12-25 [FREE Full text] [CrossRef] [Medline]
- Dinesen B, Nonnecke B, Lindeman D, Toft E, Kidholm K, Jethwani K, et al. Personalized telehealth in the future: a global research agenda. J Med Internet Res 2016 Mar 1;18(3):e53 [FREE Full text] [CrossRef] [Medline]
- Meskó B, Drobni Z, Bényei E, Gergely B, Győrffy Z. Digital health is a cultural transformation of traditional healthcare. Mhealth 2017;3:38 [FREE Full text] [CrossRef] [Medline]
- Schmitt A, Gahr A, Hermanns N, Kulzer B, Huber J, Haak T. The diabetes self-management questionnaire (DSMQ): development and evaluation of an instrument to assess diabetes self-care activities associated with glycaemic control. Health Qual Life Outcomes 2013 Aug 13;11:138 [FREE Full text] [CrossRef] [Medline]
- Anderson RM, Funnell MM, Fitzgerald JT, Marrero DG. The diabetes empowerment scale: a measure of psychosocial self-efficacy. Diabetes Care 2000 Jun;23(6):739-743 [FREE Full text] [CrossRef] [Medline]
- Wallston KA, Rothman RL, Cherrington A. Psychometric properties of the perceived diabetes self-management scale (PDSMS). J Behav Med 2007 Oct;30(5):395-401. [CrossRef] [Medline]
- Mezo PG. The self-control and self-management scale (SCMS): development of an adaptive self-regulatory coping skills instrument. J Psychopathol Behav Assess 2008 Nov 8;31(2):83-93. [CrossRef]
- McGuire BE, Morrison TG, Hermanns N, Skovlund S, Eldrup E, Gagliardino J, et al. Short-form measures of diabetes-related emotional distress: the problem areas in diabetes scale (PAID)-5 and PAID-1. Diabetologia 2010 Jan;53(1):66-69. [CrossRef] [Medline]
- Eikelenboom N, Smeele I, Faber M, Jacobs A, Verhulst F, Lacroix J, et al. Validation of self-management screening (SeMaS), a tool to facilitate personalised counselling and support of patients with chronic diseases. BMC Fam Pract 2015 Nov 11;16:165 [FREE Full text] [CrossRef] [Medline]
- Eikelenboom N, van Lieshout J, Jacobs A, Verhulst F, Lacroix J, van Halteren A, et al. Effectiveness of personalised support for self-management in primary care: a cluster randomised controlled trial. Br J Gen Pract 2016 May;66(646):e354-e361 [FREE Full text] [CrossRef] [Medline]
- Kaehne A. Care integration - from 'one size fits all' to person centred care comment on 'achieving integrated care for older people: shuffling the deckchairs or making the system watertight for the future?'. Int J Health Policy Manag 2018 Oct 1;7(10):955-957 [FREE Full text] [CrossRef] [Medline]
- Docteur E, Coulter A. Patient-Centeredness in Sweden's Health System: An External Assessment and Six Steps for Progress. Stockholm, Sweden: Myndigheten för vårdanalys; 2012.
- Ekman I, Swedberg K, Taft C, Lindseth A, Norberg A, Brink E, et al. Person-centered care--ready for prime time. Eur J Cardiovasc Nurs 2011 Dec;10(4):248-251. [CrossRef] [Medline]
- Olsson L, Ung EJ, Swedberg K, Ekman I. Efficacy of person-centred care as an intervention in controlled trials - a systematic review. J Clin Nurs 2013 Feb;22(3-4):456-465. [CrossRef] [Medline]
- Ekman I, Hedman H, Swedberg K, Wallengren C. Commentary: Swedish initiative on person centred care. Br Med J 2015 Feb 10;350:h160. [CrossRef] [Medline]
- Swedish National Guidelines for Diabetes Care In Swedish. Socialstyrelsen: Startsida. URL: https://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/21113/2018-10-25.pdf [accessed 2020-01-10]
- Lupton D. The digitally engaged patient: self-monitoring and self-care in the digital health era. Soc Theory Health 2013 Jun 19;11(3):256-270. [CrossRef]
- McCrorie AD, Donnelly C, McGlade KJ. Infographics: healthcare communication for the digital age. Ulster Med J 2016 May;85(2):71-75 [FREE Full text] [Medline]
- Kirk A. Data Visualisation: A Handbook for Data Driven Design. London, UK: Sage Publications; 2016.
|DSN: diabetes specialist nurse|
|HbA1c: glycated hemoglobin|
|SeMaS: Self-Management Screening|
|SMASc: Self-Management Assessment Scale|
|T2D: type 2 diabetes|
Edited by E Borycki; submitted 18.09.19; peer-reviewed by L Sun, P Lopez Jornet, A Mallidou, D Chrimes; comments to author 25.11.19; revised version received 10.05.20; accepted 10.08.20; published 12.09.20
©Ulrika Öberg, Carl Johan Orre, Åsa Hörnsten, Lena Jutterström, Ulf Isaksson. Originally published in JMIR Nursing Informatics (https://nursing.jmir.org), 12.09.2020.
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